Millions of young people could miss out on effective treatments because so few take part in medical research, new data shows.
The Guardian’s analysis found that 18- to 24-year-olds make up 8% of England’s population but only 4.4% of research participants, leaving Gen Z underrepresented in clinical trials. Experts warn this could make future treatments less safe or effective for younger patients.
“Young people face unique health challenges shaped by life transitions and inequalities,” said Kirsty Blenkins of the Association for Young People’s Health. “If research excludes them, treatments may not meet their needs.”
Barriers include low awareness, limited recruitment efforts, and concerns over confidentiality. The NIHR says many don’t realise research also covers everyday issues such as diabetes or mental health, not just serious diseases.
The NIHR’s new volunteer registry aims to boost participation by matching people with studies based on their health or interests. “Even healthy people can help shape the NHS of tomorrow,” said Dr Esther Mukuka, NIHR’s director for research inclusion.
Experts warn that without greater youth participation, medical progress risks deepening health inequalities across generations.
